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Sunday 9/4/06
I was in the city centre yesterday, and I saw a guy in a wheelchair
with a collection bucket in his lap. Now, he could have been collecting
for any number of good causes, but what is the image and impression
which lingers? That old tired charity model of the poor unfortunate
guy in a chair rattling his tin. I personally would/could never
put myself in that position, where you (perhaps unwittingly) perpetuate
negative stereotypes, no matter how good and just the cause is.
The ultimate cost is too high, think forward not backwards! God,
I must look so pathetic lately. Due to a combination of the chair
I've been in (quickie ti) and the progression of FA, my lower legs
shoot out all the fuckin time and just refuse to sit on the footrest.
It is an absolute nightmare going anywhere, as literally I am stopping
every 10 seconds to put my feet back ( or have them put back by
kindly strangers). My occupational therapist says that it is a neural
responce, caused by the poor posture I currently have in this chair.
I am almost in a constant reclining position, and when the legs
are'nt bent at 90 angles and splay out, then the brain thinks this
is the new natural position, and adjusts accordingly . Yesterday,
I just gave up and let them stick out, even though I got a lot of
stares. What a sad sight I must make, reclining position, splayed
out legs and an increasingly unintelligible voice.But gotta keep
going, not gonna stay in my room all day.Read a fabulous page about
a woman's battle with MS and her faith in alternative medicine,
and the power of the mind, which is something I am increasingly
interested in too!
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